Blood Transfusion Supplement 3 - Haemophilia Centre Accreditation Systems and Networks of Centres of Expertise for Rare Diseases in Europe and North America (off subscription) (April)
Haemophilia Centre Certification Systems: optional or optimal choice for healthcare systems?
 
Authors:  Gabriele Calizzani, Michael Makris, Pier Mannuccio Mannucci, Domenica Taruscio, Giuliano Grazzini, Fabrizio Oleari
Pages:  s492-s494
To cite this article:  Blood Transfus 2014; 12 Suppl 3: s492-4
Doi:  10.2450/2014.0076-14s
Published online:  06/05/2014

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On July 11th 2013, an international meeting on Haemophilia Centre Certification Systems across Europe was held at the National Institute of Health in Rome1  with the goal of evaluating the possibility of  transposing the principles contained in the Directive 2011/24/EU2, usually referred to as the Cross-border Healthcare Directive, into the reality of the current health systems of Member States (MSs). In fact, haemophilia and other inherited bleeding disorders (IBDs) meet the definition of rare diseases (RDs) provided by the European Commission as they are life-threatening or chronically debilitating diseases whose prevalence is less than 5 in 10,000 persons in the EU3. (...)
  
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